Category: Dystonia

I suffer many movement disorders, but no matter what I keep going, I will not let them win! Though it’s not really a choice!

Hello, I have not posted for a long time, so thought I would post an update. Well, I’m Andrea, I set this website up to help others like myself, and so you know you are not alone. I suffer from ‘Dystonia’ which is a movement disorder giving ‘spasms’, which I have ‘Botox injections’ for. I …

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The Covid Injection

At the end of February, I went to have my first injection to protect against the Covid virus. It really knocked me out, I had a slight headache and I slept for about three days. Weirdly this week I lost all energy again, and have slept most of the week. I have had utterly no …

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I am sad….😔

I hurt in every fibre of my body, from head to toe. There is no reason for it, other than my disorders. All my muscles are inflamed, most of my joints hurt, elbows, hips, knees, even my ankles. I’m told they think I also have Fibromyalgia, just another problem to add to my long list. …

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Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo

Dystonia sufferers may find this question and answer session with Dr Harbinder Sandhu,done for The Dystonia Society very interesting. 🙂 http://www.dystonia.org.uk/index.php/26-living-with-dystonia/638-dr-harbinder-sandhu-q-a-video Harbinder Sandhu Q & A’s from The Dystonia Society on Vimeo So that you can find individual questions easily, the timings for each question are included below: 2:00 – Can you tell us a …

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Aww I Hurt! 

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

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Botox Injections 

I had my Botox Injections last Tuesday, and they couldn’t have come soon enough! I was in so much pain with my eye, neck and head that I was having trouble sleeping. I thought you might like to see the injection points that I have, so here are some pictures to demonstrate. I have the …

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