Category: Uncategorised

I suffer many movement disorders, but no matter what I keep going, I will not let them win! Though it’s not really a choice!

Hello, I have not posted for a long time, so thought I would post an update. Well, I’m Andrea, I set this website up to help others like myself, and so you know you are not alone. I suffer from ‘Dystonia’ which is a movement disorder giving ‘spasms’, which I have ‘Botox injections’ for. I …

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The Way It Feels…

Have you ever laid in the dark wide awake? With the pain in your body making your brain feel alive? Or is it the aliveness of the brain, making the body feel pain? Each pain makes a spark as they flash from axon to neuron pulsating in your brain, making your mind alive with thoughts! …

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The Pain Of Loneliness

Does anyone ever feel lonely? Does anyone ever feel confusion? Does anyone ever have memory loss? Does anyone else feel so raw inside, they feel there will never ever heal again? Does anyone ever feel that they are on their own, and there’s just no one there to help them? I live with my partner, …

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Moving Your Twisted Body Through Dance

There are many of us who go through each day, struggling with the jiggling movements of our necks. The twisting contorted movements, or the quick swinging round of the head from the neck muscles spasming and moving wrong due to the Movement Disorder called Dystonia  . These neck movements of Dystonia are actually named ‘Cervical …

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Hi it has been a while!

Picture from Bing Images I’ve not written for such a long time, I just have not been well enough to put the small amount of energy I had, into blogging. I have needed to give everything to myself, give me time to try to heal a little. If we never stop and look at ourselves …

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Working Together With The Patient

It is great to read an article, where they talk about “working together with the patient”.  Patients do have a voice, and they do Google their problems. So even if they may have picked up and stayed with the wrong medical diagnosis, it is better to be able to talk it through with the doctor …

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