Hello, I have not posted for a long time, so thought I would post an update. Well, I’m Andrea, I set this website up to help others like myself, and so you know you are not alone.
I suffer from ‘Dystonia’ which is a movement disorder giving ‘spasms’, which I have ‘Botox injections’ for. I get five injections around my eye for my ‘Blepharospasm’, then one in my eyelid right on the outer edge, two for my check one near my nose the other at the side of my cheek, and then a large dose for my neck injected in my splenis muscle for my ‘cervical dystonia’.
I also suffer from ‘Functional movement disorder’, which has given me weakness on all of my left side, in my leg, back, neck, arm, hand, and it gives me spasms in all areas, not all the time but enough. I also get ‘Non epileptic attacks’, which came with my Functional problems too.
Then on top of all this, I have a lot of back pain which is from it being full of ‘Arthritis’, along with having ‘Degenerative Disc Disease’ which sadly runs in my family, and with one of my daughters already starting with it in her twenties. It leaves us suffering from ‘chronic pain syndrome’ which our bodies have to continually fight against, then leaving us with ‘chronic fatigue syndrome’. Not one day is easy.
Then I started suffering a few years ago, with really bad pains in my shoulders and knees, which again is from ‘arthritis’, for which I get pain relief steroid injections. I also take a multitude of medications, for all my problems, to help me get through the day.
My ‘functional movement disorder’ was put down to my brain having a disfunction in the wiring, following having massive stress at work from my boss, and problems in my home life, with my now ex husband.
I’ve been having trouble since 2010 from dystonia, but my functional problems started in 2012. Then my arthritis problems started approximately five years ago, around 2016. Needless to say, I am now disabled having to use a wheelchair or mobility scooter to get out and about, and have to use walking sticks in the house. I have to say that becoming disabled, has been the biggest heartache of my life!
Some people only have a few problems, while others have more. However many it doesn’t matter, we all suffer in our own ways. That’s why we need to be here for each other.
Take care x