Sep 10

Life! Honestly :(

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Oh boy I am soooo tired! I had a really bad night last night, I had so many muscle spasms and terrible pain I hardly slept and was waking putting Piroxicam muscle gel on my back, arms, hands and legs!!! Yup in that much pain So hardly any sleep you would think I would catch …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/09/10/life-honestly/

Aug 17

Night Seizures And Spasms! :(

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  Okay, so by now you all know I suffer from a “Brain Disorder“, maybe a few! I  also suffer from seizures, I have included images of both “Focal Seizures”, and “Simple Partial Seizures”. I suffer from all of these, and it is no fun. My diagnosis has changed over the years, and I have …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/17/night-seizures-and-spasms/

Aug 10

Today’s Head And Neck MRI Scan Outcome!

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I am now sat resting, eating my chocolate bought for me by my man and watching television. I’m still a bit shook up from my seizures this morning, and still not feeling anywhere near a 100%. This morning, I went to have my “Head and Neck” MRI scans. I am shocked and saddened at how …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/10/todays-head-and-neck-mri-scan-outcome/

Aug 06

Physiotherapy Appointment

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Yesterday I went for my first Physiotherapy appointment at Tameside Hospital, I was seen by a Neurology Physiotherapist. She was great, a really nice lady and understanding. She made me feel at ease straight away, and didn’t have to ask me too many questions. She had already been sent loads of information from both my …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/06/physiotherapy-appointment/

Jul 31

Upcoming Physiotherapy

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Next week I am going to Tameside hospital for Physiotherapy, for the first time in years. Yes, nobody in all this time has thought to offer me help with my walking issues!? Or any of my other Movement Disorders. I eventually asked my Dr for help, when I saw her I was going through a …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/31/upcoming-physiotherapy/

Jul 24

Back Pain and Mental Strain

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zv7qrnb I’m laid here on the sofa in so much pain, I can’t even single things out anymore! My head, my hands, my arms, my legs, my ear, my back! Sooooo much pain!? I was paralysed most of Tuesday morning, and really had to push myself to move. It seems to work by movement coming …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/24/back-pain-and-mental-strain/

Jul 17

Introduction To Dystonia

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The following link is to a Neurology site, that gives excellent information on explaining what Dystonia is. Along with the different types, and names of the areas affected in the body. Just great information for any Dystonia sufferers About Health – Introduction To Dystonia I hope it helps answer any questions people may have, and …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/17/introduction-to-dystonia/

Jul 11

AGONY!!!

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If my Neuro Consultant could see me today, there would be no way he could question my spasms, my stiffness, my head pain, my excruciating pains everywhere in my body that my meds are just not touching! Ruined mine and one of the kids morning, as I got up and tried so hard but just …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/11/agony-2/

Jul 06

Devastated!

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I don’t know where to begin, or how to put into words how I feel lately other than “Devastated”! I haven’t posted recently, because honestly it all just hurts too much to write about. So I’m sorry this is quite a long post, I just wanted to warn you I’ve had several appointments in the …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/06/devastated/

Jun 03

Dystonia Meeting

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Last Saturday I went to the Manchester Dystonia meeting, run by two ladies for “The Dystonia Society“. This meeting we had a gentleman who came to do a talk, who found through his career he got Focal Dystonia in his shoulder and elbow. His name is Jonathan Price. Jonathan was principal cellist for the Manchester …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/06/03/dystonia-meeting/

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