Aug 04

Steroid Back Injections

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   Urghhh! It’s neatly 3.30pm in the morning here in the UK England, and I can’t sleep because of my back pain!   I have muscles spasming (from Dystonia) in my back, thinking they are helping to stop the pain! That’s what the Neurosurgeon explained to my partner and I, at my appointment last Thursday. …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/08/04/steroid-back-injections/

Jul 16

Never Give Up!

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  I just wanted to say a few words about Functional Movement Disorder, and how we are left to cope with the symptoms on our own. I’ve had lots of the symptoms, but I still continue to fight to make sure if they are functional or not. This disorder has so many overlapping symptoms from …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/07/16/never-give-up/

Apr 27

Doctors Referral For Back Scan At Last!

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   Hi guys, I got in to see the Dr today. She chatted with me about my past, when my back pains started, and from what. She checked and felt up and down my spine, making me wince and cry out at points. She was a bit surprised I’d never had my back scanned before, …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/04/27/doctors-referral-for-back-scan-at-last/

Apr 09

It’s A Bed Day

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  I’m having trouble getting out of bed today, not that it matters as I have nothing to do! My legs are too heavy and not working right, I have actually been out I had to crawl to the toilet. I’m on my own, so nobody to see my embarrassment! My head is also heavy, …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/04/09/its-a-bed-day/

Mar 05

I Am Broken

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As I lay with my arms outstretched, crouched at the side of the bed. My head down and tears fully flowing, with me sobbing and not knowing how to stop. I am a broken woman! I still have flashbacks, I still relive moments from my past. I want my girls to hold and hug close, …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/03/05/i-am-broken/

Jan 17

Just Coping Day To Day

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I know I don’t post much lately, but honestly it would all be mostly a copy of last years blog. Going to my several different appointments, how I’m suffering in the several different ways I do due to my many different movement disorders. Dystonia, Functional Movement Disorder, Functional Disorder, Functional Dystonia, Movement Disorders, NEAD, Non …

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Permanent link to this article: http://www.dystoniasufferer.com/2015/01/17/just-coping-day-to-day/

Dec 21

I Awoke Paralysed

Today didn’t start at all well for me, as for the first time in a while I woke paralysed. I could hardly move my legs, my body heavy, but my arms and hands didn’t move at all for quite a while. I don’t panic anymore, it only makes it worse for me and being paralysed …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/12/21/i-woke-paralysed/

Dec 09

It’s Been A While!

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Photo credit – Google pictures Hi guys, well it’s been a while since I’ve come up for air and blogged. Truth be told, I’ve been going through bad depression. When I’m like that honestly you DO NOT want to read my written rantings of page after page of my self doom, that you don’t care …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/12/09/its-been-a-while/

Oct 24

Why Am I Crying?

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I’m laid in the bedroom, away from all the noise of family. I’m removed to the relative quiet, in a space on my own. I don’t know what’s wrong, I came for an extra pain killer for my head. Then I laid down and cried, just cried! Tears rolling down my face unable to stop, …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/10/24/why-am-i-crying/

Oct 03

Brain Pain

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I’m really not feeling that great, Every day I’ve no idea of my fate. I try to embrace all in life, Through whatever is to be my strife. But the pains in my brain, No one can see, or explain. I am left just to endure, Though I don’t think I can take anymore. I …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/10/03/brain-pain/

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