Oct 24

Why Am I Crying?


I’m laid in the bedroom, away from all the noise of family. I’m removed to the relative quiet, in a space on my own. I don’t know what’s wrong, I came for an extra pain killer for my head. Then I laid down and cried, just cried! Tears rolling down my face unable to stop, …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/10/24/why-am-i-crying/

Oct 03

Brain Pain


I’m really not feeling that great, Every day I’ve no idea of my fate. I try to embrace all in life, Through whatever is to be my strife. But the pains in my brain, No one can see, or explain. I am left just to endure, Though I don’t think I can take anymore. I …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/10/03/brain-pain/

Sep 10

Life! Honestly :(


Oh boy I am soooo tired! I had a really bad night last night, I had so many muscle spasms and terrible pain I hardly slept and was waking putting Piroxicam muscle gel on my back, arms, hands and legs!!! Yup in that much pain So hardly any sleep you would think I would catch …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/09/10/life-honestly/

Aug 17

Night Seizures And Spasms! :(


  Okay, so by now you all know I suffer from a “Brain Disorder“, maybe a few! I  also suffer from seizures, I have included images of both “Focal Seizures”, and “Simple Partial Seizures”. I suffer from all of these, and it is no fun. My diagnosis has changed over the years, and I have …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/17/night-seizures-and-spasms/

Aug 10

Today’s Head And Neck MRI Scan Outcome!


I am now sat resting, eating my chocolate bought for me by my man and watching television. I’m still a bit shook up from my seizures this morning, and still not feeling anywhere near a 100%. This morning, I went to have my “Head and Neck” MRI scans. I am shocked and saddened at how …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/10/todays-head-and-neck-mri-scan-outcome/

Aug 06

Physiotherapy Appointment


Yesterday I went for my first Physiotherapy appointment at Tameside Hospital, I was seen by a Neurology Physiotherapist. She was great, a really nice lady and understanding. She made me feel at ease straight away, and didn’t have to ask me too many questions. She had already been sent loads of information from both my …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/08/06/physiotherapy-appointment/

Jul 31

Upcoming Physiotherapy


Next week I am going to Tameside hospital for Physiotherapy, for the first time in years. Yes, nobody in all this time has thought to offer me help with my walking issues!? Or any of my other Movement Disorders. I eventually asked my Dr for help, when I saw her I was going through a …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/31/upcoming-physiotherapy/

Jul 24

Back Pain and Mental Strain


m4s0n501 I’m laid here on the sofa in so much pain, I can’t even single things out anymore! My head, my hands, my arms, my legs, my ear, my back! Sooooo much pain!? I was paralysed most of Tuesday morning, and really had to push myself to move. It seems to work by movement coming …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/24/back-pain-and-mental-strain/

Jul 17

Introduction To Dystonia


The following link is to a Neurology site, that gives excellent information on explaining what Dystonia is. Along with the different types, and names of the areas affected in the body. Just great information for any Dystonia sufferers About Health – Introduction To Dystonia I hope it helps answer any questions people may have, and …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/17/introduction-to-dystonia/

Jul 11



If my Neuro Consultant could see me today, there would be no way he could question my spasms, my stiffness, my head pain, my excruciating pains everywhere in my body that my meds are just not touching! Ruined mine and one of the kids morning, as I got up and tried so hard but just …

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Permanent link to this article: http://www.dystoniasufferer.com/2014/07/11/agony-2/

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